50 years ago, Lupus (SLE) was regarded as a terminal condition. Most people diagnosed would have passed away from complications within the first 10 years. Now, thanks to advances in treatments patients are now able to live a normal life span.
However, in most cases, the condition is still active. It affects our every day life, no matter how careful we tread, Lupus can still spring out of nowhere. It is a condition that is full of surprises and unknowns, I may be healthy today but something unexpected may occur tomorrow, or the day after, or the day after……
The treatment advances so far have positively extended and benefitted our lives and wellbeing, though we are still a long way from finding a stable treatment or cure. There are still unanswered questions regarding its causes, whether it is genetic or not, or whether it is a lifestyle issue. For this reason, we need to raise awareness to the importance of funding for Lupus research.
For me, I am able to live a normal-ish life, by that I mean I can go about my daily activities without the need for much support, that is until I have a flare-up. However, for others they are not so fortunate, their condition renders them bed-bound or constantly in hospital, although their life-span has been extended they are not able to actually live. As cliché as it sounds, what is life without living?
Please help illuminate the importance of Lupus to the World Health Organisation so that more funding can be put into this invisible condition by signing this petition:
Thank you all so much for your love and support, it is greatly appreciated!
Much love, xX